As a parent or carer it is normal to have worries and concerns as your child grows up.
Parents & Carers
Services and patient groups
Your local haemophilia centre provides care twenty-four hours, seven days a week. If you need advice out of hours see the Hospitals page for your local haemophilia centre arrangements.
Haemophilia centres are able to provide a wide range of services to support you and your child, and they can point you in the right direction when you require services outside of their department. These include:
– Specialist nurses
– Play therapists
– Specialist healthcare in other areas
– Social workers
– Information on local patient and parent groups
– Information on the ‘buddy’ scheme
For more information on some of the common issues for parents and carers please see the My bleeding disorder sections. Topics covered include school, sport and looking after a young child, as well as the Teenager section for slightly older children but also helpful for parents and carers too!
As a parent or carer there may be times when you feel you need additional support. Please discuss this with your haemophilia team who will be able to signpost you to different resources depending on the situation. Within Hampshire, the Princess Royal Trust has lots of information for carers of all ages, caring for all different conditions.