Women’s Issues

Women with bleeding disorders
If you have a symptomatic bleeding disorder such as Von Willebrand disease, you may be affected by regular heavy periods, which is called menorrhagia.

If you are experiencing heavy periods on a regular basis, you should contact your GP or haemophilia centre. The symptoms to look out for are heavy bleeding, large blood clots, needing to change your sanitary wear every one to two hours, and absences from work as a result.

Menorrhagia is a manageable condition, therefore with treatments and support from your family and healthcare team you will be able to live life to the fullest without too much compromise. Our advice for your continued peace of mind is to remember to pack sanitary towels and tampons as well as a change of clothing when you are expecting your period, so that you are always prepared. More information can be found in the Von Willebrand disease area of the site, and in the links listed below.

If you are looking for advice on sex and relationships, you can find information and links to external resources under the Lifestyle area.

If you are a symptomatic carrier of haemophilia, you may be prone to less severe symptoms of the disorder such as bleeds and so may also experience menorrhagia. As discussed above, it is a manageable condition that your healthcare team can assist you with.

As you begin to enter long term relationships, you may start thinking about your future as a mother. It can bring with it a whole range of emotions and concerns, which your family and healthcare team can support you with. Services which you may want to look at include genetic counselling which can offer you further information on the inherited bleeding disorder that runs in your family, discuss tests which can be carried out, and information on patient support groups.

More detail concerning pregnancy and having a baby, if you are a carrier or have a symptomatic bleeding disorder, can be found in the Baby section.

Additional resources written specifically for women can be found online, and we have included links to many in the list below.

The Haemophilia Society

The Foundation for Women & Girls with Blood Disorders

Haemophilia Foundation Australia